CML HORIZONS 2020 (Virtual)

November 6th - 8th

General info

Times may still be uncertain around the globe because of the COVID-19, but one thing remains true, there is a simple power in people coming together. Even though regretfully we had to cancel Costa Rica 18th CML Horizons will be held as a virtual conference and we come together online. Please join us virtually this November 6-8th during the time zone of Central European Time (CET).


The CML Horizons virtual conference is dedicated to the development of our members as patient advocates and this year at our virtual event, we will be discussing topics such as History of CML, Challenges with COVID-19 & Access, Living well with CML, Generics, Therapy-free remission and Building alliances and partnerships. Even though we are virtual we are aiming to still provide opportunities to be able to exchange ideas & share best practice and for you to adapt to your own organization.


We very much hope that you will be able to participate in the 18th virtual conference - with an exciting program on CML advocacy and CML science.


We have secured top speakers like Dr. Hochhaus, Dr. Cortez, Dr. Lipton, and Dr. Benneh with special messages from Dr. Brian Druker and Dr. Pia Raanani plus leading Patient Advocate experts.


Our conference will provide you with knowledge on how to make a difference in the lives of patients, identify opportunities in patient support & advocacy, and learn from the experts - both patient advocates and physicians. We may not be able to network as we have in the past but through the interactive regional virtual session, we are able to continue sharing ideas and grow the CML community.


CML Horizons is organised by CML Advocates Network. The organisation team includes Lidija Pecova and Giora Sharf. You can contact Lidija via email: [email protected] or Mobile: +389 7838 8235 (available via WhatsApp, Telegraph & Viber).


We very much hope that you will be able to participate in the 18th virtual conference - with an exciting program on CML advocacy and CML science. Please take a moment to study the agenda at a glance below or DONWLOAD the full preliminary agenda
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Agenda

Fri 6
Sat 7
Sun 8
14:00
Opening: Part 1 - Welcome & Update
14:10
Opening: Part 2 - Update from Costa Rica
14:15
Opening: Part 3 - Interaction with Virtual platform and an overview of the program
14:30
Medical #1: Part 1 - What CML looked like 25 years ago
14:45
Medical #1: Part 2 - Perspectives on the development of TKI and its impact on our current understanding of CML
15:10
Medical #1: Part 3 - New generation TKIs/ ABL001
15:35
Medical #1: Part 4 - Transplants; Options, Explorations & Eligibility
16:00
Medical #1: Part 5 - Q&A
16:15
Break
16:30
Advocacy #1: Part 1 - How has COVID-19 affected patient support?
16:45
Advocacy #1: Part 2 - Patient Organisations adapting activities to COVID-19 reality
17:00
Advocacy #1: Part 3 - Access during COVID-19
17:15
Advocacy #1: Part 4 - CML Atlas- novel way of gathering data from the region
17:30
Advocacy #1: Part 5 - Venezuela access to Bosulif
17:45
Advocacy #1: Part 6 - Q&A
18:00
End
14:00
Medical #2: Part 1 - Five most important things someone living with CML needs to do to manage their disease and achieve the best outcomes
14:30
Medical #2: Part 2 - An exploration of the drugs available for CML, typical side effects & how to manage them
15:00
Medical #2: Part 3 - When you can’t reach your milestones: How to overcome resistance?
15:30
Medical #2: Part 4 - Q&A
15:45
Break
16:00
Advocacy #2: Part 1 - Generic TKIs (in CML): An introduction
16:20
Advocacy #2: Part 2 - Panel Discussion: Efficiency of Generics / Harnessing the power of generic CML drugs & Myths vs reality of Generics
17:00
Advocacy #2: Part 3 - Q&A
17:15
End
14:00
Medical #3: part 1 - Update on TFR research: Who is the optimal patient for treatment discontinuation?
14:25
Medical #3: Part 2 - Monitoring challenges in countries where quality monitoring is unavailable
14:50
Medical #3: Part 3 - CML Advocates Network's TFR material
15:15
Medical #3: Part 4 - Q&A
15:30
Break
15:45
Advocacy #3: Case studies: of collaboration between PO’s / HCP / Institutions Part 1A - Case study 1: Balkan Region – Rehabilitation Programme
15:58
Advocacy #3: Part 1B - Case study 2: TBC
16:10
Advocacy #3: Part 2 - How do alliances with other patient organisations strengthen our CML work? CORD and Rare Diseases (North America)
16:35
Advocacy #3: Part 3 - WECAN (Europe)
17:00
Advocacy #3: Part 4 - Q&A
17:15
Break
17:30
Regional report: Asia & Pacific Region
17:38
Regional report: Western Europe Region
17:46
Regional report: Eastern Europe & West Asia
17:54
Regional report: Africa & Middle East
18:02
Regional report: Latin America
18:10
Regional report: North America
18:18
Closing remarks and farewell
Download PDF

Speakers

Šarūnas

Narbutas

CML Advocates Network Co-chair & Chairman of Youth Cancer Europe

Giora

Sharf

Co-founder

CML Advocates Network & Director of Flute of Light, Israel.

Lisa

Machado

Treasurer/Steering Committee

CML Advocates Network North America Region & Founder of CML Canadian Network

Pat

Garcia-Gonzalez

CEO

The Max Foundation

Roderick

Padua

Steering Committee

CML Advocates Network Asia & Pacific Region & President of Touched By Max

Jelena

Čugurović

CML Association of Serbia

Jerry

Clements

Founder & CFO

CML Buster Foundation

José Luis

Castro Aguilar

Steering Committee

CML Advocates Network Latin America Region & Legal Scientific Affairs at AGALEMO

Andrian

Rakhmatsyah

Secretary-General

Indonesian CML & GIST Community (ELGEKA Indonesia)

Eunice

Orekha

President

Maxcare Foundation

Amma

Benneh-Akwasi Kuma

Consultant Haematologist

Korle- Bu Teaching Hospital

Andreas

Hochhaus

Prof. Dr. med.Jena University Hospital, Jena, GermanyGerman CML Alliance

Jena University Hospital

Jeffrey

H Lipton

Professor of Medicine, PhD MD FRCPC

Princess Margaret Cancer Centre

Felice

Bombaci

CML Advocates Network Co-Chair & Chair of Gruppo AIL Pazienti LMC

Kristina

Modic

Executive Director

Slovensko združenje bolnikov z limfomom in levkemijo, L&L

Bahija

Gouimi

Steering Committee

CML Advocates Network Region Middle East & Africa & President of the Association AMAL

Jan

Geißler

Co-Founder

CML Advocates Network & Chair of LeukaNET

Jorge

Cortes

Director

Georgia Cancer Center

Cornelia

Borowczak

Active patient advocate

LeukaNET, Parents Organization for Children with CML

Denis

Costello

Executive Director, CML Advocates Network

Celia

Marín

Head of Communications and Programme Manager

CML Advocates Network

Durhane

Wong-Rieger

President & CEO

Canadian Organization for Rare Disorders

Pia

Raanani

Head of Hematology department.

Rabin medical center Petach Tikva, Israel

Jana

Pelouchová

Co-founder

CML Advocates Network & President of Diagnoza Leukemie

Brian

Druker

Professor

Oregon Health & Science University, Portland, Oregon. Director of OHSU’s Knight Cancer Institute.

Mercedes

Arteaga

Program Officer

Program Officer for Latin America at The Max Foundation

Ahmed

Awad

Founder & President

Power of CML

Zack

Pemberton - Whiteley

Chief Executive Officer

Leukaemia Care & Chair of Acute Leukemia Advocates Network (ALAN)

Cristian

Neves

Director

Corporación Maxi Vida Chile

Sponsors

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